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NBC’S DATELINE DOCUMENTS CHILDREN SHUT OUT FROM SUNLIGHT WITH LIFE-THREATENING MEDICAL DISORDERS

Jun 10, 2015 Sarah Coffey
Dateline
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Kate Snow Shines A Light On Children Living In The Shadows With Rare Medical Conditions That Force Them To Hide From The Sun

“Out of the Shadows” Airs Sunday, June 14 at 7p/6c on NBC’s Dateline

New York – June 10, 2015 – NBC’s Dateline will take viewers inside the extraordinary lives of children who suffer from rare medical conditions that prevent them from one of life’s simplest pleasures: sunlight. “Out of the Shadows” documents the diverse cases of children diagnosed with Erythropoietic Protoporphyria (EPP), a disorder that leaves them in severe pain when exposed to direct sunlight and UV rays, and Xeroderma Pigmentosum (XP), an illness with potentially fatal consequences. Parents who were forced to flip their world upside down speak candidly with NBC News National Correspondent Kate Snow about the hardships they face to protect their children from relentless sunlight, isolation and ridicule. Dateline’s “Out of the Shadows” airs Sunday, June 14 at 7p/6c on NBC. 

Watch a preview of “Out of the Shadows” here: http://www.nbcnews.com/dateline/video/preview-out-of-the-shadows-461441603928

Snow shares the remarkable stories of children as they learn to adapt to their limitations and highlights their personal experiences at Camp Sundown, an international haven where kids with light-sensitivity disorders can go to not feel alone in the dark. “Out of the Shadows”  follows three families’ emotional journeys as they search for a cure, reach major milestones, and prove that the disorders will not hold them back from getting the most out of life.

###

Dateline NBC is the award-winning newsmagazine known for its distinctive storytelling on a wide range of topics from true crime investigations and mysteries, to breaking news reports and special series. It airs on NBC in primetime and reaches an average audience of 7 million viewers and is followed by over 1.7M followers on social media. David Corvo is the senior executive producer, Liz Cole is the executive producer and Lester Holt is the primary anchor of “Dateline NBC” (Thursdays at 8pm/7c, Fridays at 10pm/9c, Sundays at 7pm/6c). Follow Dateline NBC on Facebook and Twitter @datelinenbc.

 

For more information contact:

Brianne Beers

NBC News

e: brianne.beers@nbcuni.com


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